The Fear Prison

It’s been one of those weeks where a number of seemingly unconnected events have been signs pointing me in a single direction.

I had a conversation with a friend on Monday (one which I will inaccurately paraphrase here) about the concept of a fear prison.  The concept as I understood it describes the moments when something becomes legal, permissible, even encouraged, but we are unable to embrace, accept or even explore it because we remain trapped in the FEAR of horrible consequences.  The fear remains, despite our logic brains reminding us that the actual danger has passed.  We can remain trapped, capturing ourselves into custom built, highly individualized fear prisons.  No amount of intellectual reasoning or reassurance from friends and family can truly convince us that the danger has passed, that we are safe and that the “risk” we perceive as insurmountable is, in fact, no longer a risk at all.  The fear prison is both irrational (because no actual danger exists) and extremely rational (because it exists based on threats which were at one time real).   The fact that it simultaneously FEELS real and is in fact not true, makes it a particularly challenging concept to work with.

As a survivor of abuse, sexual assault, family violence, relationship abuse and systemic discrimination and institutional violence caused by the very systems that were presented as existing to protect survivors, I have built a complex and sturdy fear prison.

This fear prison is the driving force behind, and explanation for, so many of my decisions and so many of the symptoms of PTSD which weigh down my mind, body and spirit.

Just under two months ago, my ex-husband signed court documents which were stamped and sealed by a judge, giving me sole legal custody of my two children.  In reality, this piece of paper opened the doors of a real prison.  It represented an actual, tangible increase in safety, decision making power and freedom of choice.  People in my life, knowing how long and hard I’ve fought for this piece of paper, celebrated for me.  They were happy and congratulated me for “winning” after a long fight.

I think many people are confused and somewhat disappointed by my inability to celebrate.  I don’t feel relieved.  I don’t feel safe.  I don’t feel like I have won ANYTHING.  I don’t find it easier to make decisions.  I don’t feel free.

I’m still caught in my fear prison.

The walls of the prison are built by a trifecta of related fears.

First, the fear that I can’t trust him and can’t trust the unpredictable nature of violence.  This is the fear that he might come back, that he might try to hurt me or hurt my children when I least expect it.  The fear that if I let my guard down and allow a feeling of safety to exist, that I will be most at risk.   This is entwined with a fear that if I allow myself to relax and feel happiness or relief that it will be taken away from me: swiftly, without warning and in a terrifying manner.  This is the fear that every decision I make, every plan I make, every step forward I take, everything I build can be taken away. That it will be MY fault it is taken away because I foolishly let myself believe I was safe.

Second, the fear that I can’t trust anyone.  The fear that if I’m honest with doctors about how I feel then they will judge me and find me wanting.  The fear that people don’t believe me about the events of my life and my experiences.  The fear that people find me annoying, whiny, controlling, and generally too needy.  The fear that if I open up, I will risk being hurt again.  The fear that honesty will result in terrible consequences and that I should be careful about sharing TOO much or needing TOO much because it might result in me losing my children.   This fear at a deeper levels is that other people believe that I am crazy, insane, mentally ill, hysterical or mad.

Third, the fear that rules them all, is the fear that I cannot trust myself.  The fear that I am crazy, broken, damaged and maybe delusional.  The fear that I can’t trust my own memories of the past.  The fear that I exaggerated or invented the abuse.  The fear that I’ve accused innocent people of crimes they didn’t actually commit. The fear that I’m making too much out of too little and that a “normal” person wouldn’t react this way, have these thoughts or these experiences.   The fear that all of the challenges, abuse and violence in my life have been either my own fault or creations of my own mentally ill mind.  This fear keeps me frozen, analyzing and picking apart all my flaws and potential flaws.  This fear fills me with shame and makes me feel worthless.  Or maybe I feel ashamed and worthless because of this fear.

Believing that others think you are crazy, that you can’t trust others and that you can’t trust yourself because you might actually BE crazy builds up an extremely secure fear prison.  A fear prison so strong, that no amount of reality, court orders, locks on doors, or distance can break down.

This fear prison can only be dismantled through my own healing process.  By gradually challenging my fearful thoughts and looking for evidence that my fears are no longer true or real.  It may be that some of the fears were NEVER true or real, but were creations of my abusers, projected on me and designed, plotted and crafted to drive me insane.

The path to “winning” is not in the court orders or external victories.  The winning is my stubborn refusal to give up.  The winning is staying alive despite the intense desire to die.  The winning is getting up each morning and living my life, in spite of the fears.  The winning is parenting and protecting my children each day. The winning is behaving as if I’m valid and sane, even when I believe I am worthless and crazy.  The winning is reminding myself that I am a good person and that only a very BAD person would abuse someone and gaslight them hoping they would kill themselves so they could be proven “right.”

In his mind, the only way my ex-husband can be proven right, be proven not to be an abuser, be proven to be righteous and a good person, is for me to kill myself.  If I kill myself it proves to him that I am, and have always been, CRAZY.   If I die, his narrative becomes the truth and my accusations become just the ramblings of a mentally unstable person, not to be trusted.   I will live forever just to prove him wrong!

There are reasons I have my particular type of fear prison.  I fear that I am crazy because I was led to believe this.  I was led to believe I was crazy by abusers who gaslighted me.  I was led to believe I was crazy by doctors who labelled me as borderline.  I was led to believe I was crazy by the police officer who never properly investigated my report of sexual assault.  I was led to believe I was crazy by the doctors and school principals who lied, under OATH, during my family law trial.  I was led to believe I was crazy by child protection workers who told me that I was projecting my anxiety onto my children and that I needed to be more neutral in my reactions towards my ex-husband’s transphobic violence.  I was led to believe I was crazy by family law judges, who denied that I had been abused (or denied that it was relevant to the custody arrangements).  The entire system, from the moment I was first assaulted (and even before) has been a set up to create in me the belief that I can’t trust myself, my memories, my body or my mind.

Breaking down my fear prison means trusting myself.  Breaking down the fear prison means living as if I am sane.  Breaking down the fear prison means that my memories are true and that the injustices I’ve survived actually happened.  Breaking down my fear prison means accepting that so much of the violence was completely and utterly out of my control.  That is TERRIFYING.   Believing that I was helpless to stop it and that it wasn’t my fault is terrifying.  Believing that I did everything I could and that I did my absolute best at every step and that I still was powerless to stop the abuse is terrifying.

But not as terrifying as the fear prison of believing that I am crazy.

I’m not crazy.

What to do when PTSD tells you that the entire world is unsafe?

I don’t know what to do when PTSD tells me that the entire world is  unsafe.

Trust no one.  Trust no one.  Trust no one.

Everyone will let me down.  Nobody understands me.  It’s not safe to trust.  It’s not safe to open up.  The system is broken.  Nobody believes me.

Maybe it’s me.  Maybe I’m the common link.  Maybe I’m so deeply flawed that people are better off away from me.  Maybe I deserved to be abused.  Maybe I’m the real abuser.  Maybe I’m broken and selfish.  Maybe I am controlling.  Maybe I am incapable of loving someone.

PTSD lies a lot.

PTSD makes me push people away over tiny mistakes.  PTSD makes me feel like a small vulnerable child, when someone says one harsh word.  PTSD makes me freeze in a conflict or do anything to get out of it, even if that course of action doesn’t make long term sense.

PTSD at its root tells me that the world is unsafe.  PTSD tells me that I’m unsafe and that I’ll never be safe.

It also tells me that situations are either perfectly safe or completely unsafe and dangerous.

PTSD doesn’t find a middle ground easily.

I need to get safe and grounded before the middle ground reappears.

When I’m triggered it’s all or nothing.  All the fear.  All the self criticism.  Pushing people completely away.  Feeling hopeless and that nothing has meaning.

PTSD makes me feel like trust is completely destroyed when someone makes a mistake that hurts me.  PTSD tells me that person can no longer be trusted because they will only hurt me again.  PTSD tells me that I’m safer alone.  Or that others are safer away from me.

PTSD is not a realistic judge of anything.  It doesn’t accurately assess danger.  It doesn’t accurately assess me.  It doesn’t analyze situations clearly.  It doesn’t forgive.  It doesn’t forget.  It never forgets ANYTHING that makes me feel unsafe.  And it all gets tied together in a giant clump of tangled unsafe, danger.

On the other hand, PTSD tends to forget the good times, the moments of safety.  The moments of laughter.  The moments when life has so much meaning it hurts.  It forgets the perfect moments, or tells me they are worthless because they ended.

I’m not a perfectionist.  PTSD is a perfectionist.  I’m not a control freak.  PTSD is a control freak.   I’m not a judgmental person.  PTSD is judgmental.

PTSD changes me into a person I don’t even like.

I know people have limits and boundaries and are fallible.  I know I have limits and flaws.  I know that life has good times and bad.  I know that it’s important to be grateful and see the joy in little things.

I know.

But I don’t believe.  PTSD doesn’t let me believe.  PTSD doesn’t want to risk losing the good things, so it doesn’t want to get attached to them.  PTSD is always expecting the next crisis, the next drama, the next danger, the next heart break and the next pain.  PTSD is a child cowering in the corner waiting to be hit. PTSD doesn’t let me “just calm down” or “just smile.”

I’m always waiting to be abused again.  I’m always expecting to be hurt again.

Deep down inside I’m scared that I deserve it.  That I’m not a good person.

PTSD makes me believe that I’m not a good person and that I don’t deserve happiness and health.

PTSD makes me neglect my health, because “what’s the point anyways?”

PTSD tells me that nobody believes me.

PTSD is the combined voice of all the people who have abused and hurt me over the course of my life.  PTSD isn’t me.  It’s not my voice.  It’s not random and it’s not a character flaw.   It’s the cumulative result of years of gaslighting, emotional, physical and sexual violence.  It’s the result of a broken system, systemic/institutionalized abuse which did not validate my experiences.  It’s the result of the psychiatric system, the legal system, the police, child protection and violations of trust by people in authority.

PTSD is the reason I’ve spent more than half of my life not really caring about living (at best) or actively wanting to die (at worst).

Sometimes when I’m triggered it’s not just Ana (my angry teenager) who is on the scene.  It’s a much younger child, almost pre-verbal.  All that younger part wants is to be wrapped in warm quilts and be held.   She wants her hair stroked as she cries.  She wants to be cradled and rocked and shushed.  Gently and patiently, like a parent with an infant.   That part isn’t angry like Ana,  she’s just a deep well of unmet needs.  She just wants to be safe.  This inner child has been around a lot the past few weeks.

I just want to be safe.

But I’m an adult.  And I have to take care of my needs myself now.

Justice.

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I took this photograph today.   I lived in this city most of my life and I’ve never been drawn to look at this sculpture before.

Justice.

This statue embodies exactly how my life feels at this moment.

Grey. Solemn.  Frozen in time.  An unknown, robed figure holds a sword over me, about to make decisions that will alter the course of my life and the lives of my family members.

I feel like one wrong move and the sword will pierce my heart and all will be lost.  I’m walking on a tight rope, on egg shells, on the edge of where the ocean meets the land, on a wire at a circus…fill in the metaphor or analogy of your choosing.  I’m barely breathing.

Justice for who?  How is this justice?  Years of my life spent trying to prove things that seem self evident.  Years of him being believed and me seen as crazy, or potentially crazy.  Years of my privacy being breached and shattered to the point I’m hardly sure what privacy means anymore, except to trust no one.  Is this justice?

Interpersonal violence doesn’t end the moment she walks out the door.

Domestic violence doesn’t end when she leaves.

Family violence doesn’t stop when the relationship is over.

She might be physically safe now, but she still looks over her shoulder.  She still watches herself.  She still fears that anything she says or does might get her or her children into trouble.  She lives in fear of SOMETHING happening, even though she doesn’t always know what that vague threat might be.  She rarely sees him, but he impacts almost every aspect of her life.  He calls her crazy.  He tells her kids she is crazy.  He tells anyone who will listen that she is crazy.

But if she is crazy, than every survivor is crazy.

I don’t think we are crazy.  I think the entire system is broken and set up for us to fail.  We don’t have a justice system, we have a legal system.

Wake up.  Justice doesn’t exist for women like me.

Internalized Stigma.

 

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Stigma causes me to make terrible choices.  Internalized stigma is dangerous to my health.  This is what I learned over the past few weeks.

Why do I feel so many complicated feelings about taking an anti-psychotic medication, but completely different feelings about taking arthritis medication?  The answer is internalized stigma.

Mental health stigma has taught me to be ashamed that I take psychiatric medication.  Internalized stigma causes me to think that I shouldn’t take the medication, that I should try to stop taking it as soon as possible, that I’m weak and somehow not good enough because I need medication to stay functional.  Basically, stigma lies.

Recently I started an alternative treatment which was helping me to sleep.  Because I was able to fall asleep, I decided to reduce my anti-psychotic medication.  I don’t need this!  I can function without it!  I’ll be fine as long as I’m still sleeping!  I feel okay!  What could go wrong?

As it turns out, a lot could go wrong.

Within a week of reducing my prescription medication, I was having multiple panic attacks a day, having paranoid thoughts, thinking that I was seeing my ex everywhere, afraid to leave the house and almost impulsively quit my job!

I was physically sick, dealing with a lot of triggers and somehow I thought it was going to be absolutely fine to reduce my psych meds!

I’m going to blame this on stigma.

I’m also going to blame stigma for how long it took me to realize that the change in medication was directly linked to my crisis state.

I mentioned it to my psychiatrist over the phone.  We talk very infrequently since I’ve been stable for the past few  years.  He told me to take the medication.  He told me that I have so much going on and so much stress that I don’t need to justify to anyone that I need the medication.  He said, just take it.  Just take it and don’t worry about it.

I thought about it and I realized he was right.  Why was I fighting so hard to reduce the dose of a medication that wasn’t causing me terrible side effects and, in fact, was reducing some of the most unpleasant PTSD symptoms (panic, paranoia, seeing things as a result of flashbacks)?  Why was  I judging myself so harshly?  Why was it more important to reduce the medication and not be “dependent” than it was to keep my job?

The answer was that it wasn’t more important.  That I didn’t need to judge myself.  That I needed the medication to keep the symptoms at bay.  Yes, the anti-psychotic medication (as it’s name implies) was ACTUALLY keeping me functional and not on the edge of psychosis!

I started on the higher dose that night.  Within 2 days I was back at work, within 4 days the panic attacks were reduced and almost back to “normal” levels.  Within a week, I’m feeling more hopeful and less terrified.

These pills help me.

Yes, I’ve had horrific experiences with psychiatry and psychiatric medications.  Yes, some of these drugs have made me worse and almost killed me.  Yes, there is a social stigma associated with anti-psychotic drugs.

But I’m going to work on not internalizing this stigma.  I’m going to work on accepting what is.  Accepting my current limitations.  Accepting that PTSD is a brain injury and it’s logical to take medication if it helps balance things out.

So next time I start talking about decreasing my medication, please remind me to re-read this post.  Please remind me that my health is more important than stigma.  That I’d rather be functioning and medicated, than in crisis and able to say that I don’t take any medication!  Remind me that going off my medication is NOT a good idea right now.  And maybe be gentle with yourself too…do what you need for your recovery.  Do what you need and don’t let judgment (by self or others) get in your way.  You are the expert in  your own healing.  Trust that.

 

Zombie.

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Pushing through trauma.  Trauma layered on more trauma.   Decades of trauma.

Brain shuts down.  Eerie quiet and an empty space inside where my thoughts should be.  Ears ringing.  Body feels heavy and difficult to move. Words come slowly, sticky in my mouth.  Sometimes movement and speech is impossible.  Days blur together.  Conversations become difficult to follow.  Confusion.  Short term memory loss.

When disassociation is the only way to get through the day.  There isn’t even enough energy left to panic.  When stress is something that can’t be changed, when there is no solution, when the fear is overwhelming and I am helpless.  Panic is scary, but there is motion there and emotion.  The blank space is less human somehow.

It’s not a choice.  It’s like a switch is flipped.  My brain says “NO!”  That’s enough, time to quiet down.  Anxiety becomes a physical reaction rather than worries, feelings or thoughts.

I feel like a zombie.  I’m walking around, doing day to day tasks.  I know from experience though that I’m only part there.  I know from experience that days or weeks from now my memory of this time will be divided into two extremes.  Traumatic memories, seared into my brain for life…and blank space, nothing, no memories at all.  Part of the day will be remembered for ever and part of it…it’s like it never even existed.

When stress levels are chronic and traumatic memories from the past are re-enacted in present life, new traumas in the present are linked in the brain to old traumas.  They are no longer separate events.  The brain stores them all together and confirms the facts as PTSD knows them:

“You are not safe”

“You can’t trust anyone”

“Nobody believes you”

This shifts along into another layer of faulty PTSD thinking:

“You are fat.  Your body is disgusting.  Your stomach is too big”

“Nobody likes you.  You are bothering people with your existence”

“People think you are doing a bad job.  People think you are not capable”

“You are letting everyone down”

“It’s all your fault”

In a way the thoughts and the blank space are flashbacks.  They are here, in the present moment, and they are flashbacks to times similar to this one.  The past and the present are linked in PTSD.  Like invasive vines taking over the brick wall of me.

I can’t cry.  I have to feel safe to cry.  There are no tears in the blank space.

I shrink away from being touched.  I jump and startle.

What I want most is to be held.  To be comforted.  To be kept safe.

What I can’t do is let anyone close enough to do this.  The blank space is so large, the buzzing is so loud.